National Down Syndrome Society (NDSS)
This website has up-to-date information on Down syndrome. This is a great place to start for new and expectant parents. Click the above link.
Dads Appreciating Down Syndrome (D.A.D.S.)
D.A.D.S. is a committee or community group (within a local Down syndrome support organization) of fathers of children who happen to have Down syndrome. MADSS has a D.A.D.S. group! Type your paragraph here.
Whether you have received a diagnosis of Down syndrome, a parent, family member or friend of a child with Down syndrome, an individual with Down syndrome MADSS is here to be a resource for you. Below is a list of information packets we have available upon request. Click on the title of the packet to open an electronic version, if available.
New Parent Step Pages (given by birthing centers at time of diagnosis)
Prenatal Diagnosis Packet
New Parent Packet
General Parent Packet
Please contact us here to request an information packet or have you questions answered.
Below is a partial listing of resources to assist individuals with Down syndrome and their families. Additional resources can be found here.
Woodbine House: authors offer insight, information, and support about caring for someone with Down syndrome and other developmental delays. Including reflections from veteran parents.
Global Down Syndrome Foundation- http://downsyndromeworld.org/ This organization focuses on Down syndrome research and medical care
Wisconsin First Step: www.mch-hotlines.org. A 24-hour information and referral hotline for children and adolescents with special health care needs.
Family Voices: www.fvofwi.org. Wisconsin families speaking on behalf of children and youth with unique needs.
Waisman Center:www.waisman.wisc.edu. Dedicated to the advancement of knowledge about human development, developmental disabilities and neurodegenerative diseases.
Parent to Parent of Wisconsin: www.p2pwi.org. A statewide network of families who support each other on the journey of parenting children with special health care needs.
Disability Rights Wisconsin: www.disabilityrightswi.org. Disability Rights helps people across Wisconsin gain access to services and opportunity through its advocacy and legal expertise. They regularly intervene in situations such as special education, barriers to accessibility, and more.
The Source: A resource to services and programs assisting individuals with disabilities in Dane County. Click here to download.